A 16-year-old boy has had skinfragility, skin hyperextensibility and joint hypermobility for 14 years.
患儿男,16岁。全身皮肤脆性增加,弹性过度,关节伸展过度14年。
2
Tracking my fingertips over his olive skin, I'm struck by the potency and fragility of blood and breath and bone - these intricate, insubstantial casings that separate us, keep us alive.